My letter to the good doctor:
I am a practicing physician assistant in Utah and also have a strong love for using technology to better the world. I have started a project that integrates open source projects VistA with the new decentralized, server-less, autonomous, anonymous network (SAFE; www.maidsafe.net) that will quickly replace all we know about the “internet.” In my research I have come across your OSEHRA group and postings with regard to the big data problem in genomics.
Your comments with regard to integrating genetic testing into electronic health records is brilliant, but likely an impossible feat with today’s broken system. Well with the advent of the SAFE network and the integration of VistA, it is absolute reality. The data storage capacity, cost, performance, and security is nothing short of revolutionary. My roadmap for VistA fork (HealthSAFE) is to get a working version going this year. The next step will be integrating in several wearable patient monitoring devices as well as using a person’s unique electrophysiological biomarker as the log-in method into the system.
Later phase is where I think our two passions will merge. My greatest hope is to return the caretaker role of personal health information to the patient. I think this will restore some of the faith in medical providers when we are able to abide by one of the first rules of the Hippocratic oath, ‘keep the information a secret.’ The genome of an individual seems to be one of the most sacred bits of information on the planet and really should not be totally intrusted (particularly identity associated) by anyone beyond the individual.
Long story short, I had a strong desire to pass on this information to you.